Diagnosis story/ scare

Thursday July 17th- First appointment with my new primary doctor. During the appointment she said that she wanted to have me take blood tests that would be done in the office above hers. She wanted this right away. She also said she wanted me to get a Gynecologist to just have a quick check up and to do an ultra sound. Then she went right out and scheduled for me to meet her in a month to go over results. I never called anyone because I figured I would get the appointments closer to the next visit with my doc. For a while now I have also been experiencing several symptoms that have been similar to the start my previous diagnosis. I have had pain in my hip region that felt like intense cramping. I have had issues with irregular periods and fluctuation of the flow as well. My weight has been fluctuating too. I keep trying to lose weight and it seems like the harder I try the more weight I gain. I have been working out and getting exercise six days a week.

Monday morning July 21st- A local hospital called and was asking about my maiden name. (this was the hospital that I was originally diagnosed through for my ovarian cancer back in 2006. They had my name still in the file and someone remembered me still.) They said they wanted me to come in that day and I didn't have a car so I couldn't. Then they wanted me to come in the next day and I was working so I wouldn't be available so they set up an appointment for first thing Wednesday the 23rd and my friend went with me so she could look at the screen and translate what was going on. During the scans my friend kept asking questions to the radiologist and what the object was that she was focusing on so much. The nurses can't legally tell me anything but barely audible she said it was a "cyst". Now I knew that I had at least one from scans done about two years ago, but haven't been able to find out results till now due to financial issues with medical insurance. My friend was sitting there and looked at me and said "You've got some serious stuff going on here". It's big and it looks like there is more. I will return to this in a moment. Then after she did the ovarian scan she moved to the abdomen. While there the nurse was focusing on particular part, I believe she said it was the liver. She spent more time observing that than everything else the entire time we were there, combined. (This is what happened last time as well, how we knew it was bad before docs told us.) Then after the images were done being taken the nurse went into another room and talked about my images for 20 minutes or more. When she came back I asked if I could get a copy of my images and she told me to go sit in the lobby and they would have it done in 5 minutes. Fifteen minutes later still nothing so I went to the front desk and asked. There were three other nurses hovering over the computer talking and pointing at the computer (my scans). They told me to "shoo" and go away, they would bring them to me. When getting home and looking at the scans I couldn't tell anything in the abdomen but then again I don't know that area as well. In the Ovarian scan, it appears that there is at least 4 cysts and one of them is half the size of my ovary.

Friday July 25th- I get a call from someone telling me she needed me to come in and take a CT scan as soon as possible. She asked if I was available to come right now and I said no. I didn't have a way to get there. Then she asked about Monday and I was working again all day so I wouldn't be available and the lady finally said ok then "when would work best for you?" I said how about Thursday or Friday? She said, "No, that won't do, we need to do it as soon as possible" making Tuesday the 29th the only available day. She said "9 a.m. or 2p.m.?" I said 9 because I had to work later that afternoon and didn't want to risk being late.

Monday July 28th- I got a call reminding me to come in for my appointment and asked about how long the test was going to take (normally the scan is from my shoulders to my thighs and takes 15 minutes but I need to drink contrast for 24 hours. ) They said I would be in there all of 30 minutes. I didn't need to drink or anything, just couldn't eat. Thinking this was a lie, I expected to be there for a few hours and had a friend come with me again. The receptionist said results would be sent to my doctor on the 30th and I could get a copy of the images then as well.

Friday August 1st- I have called my doctor several times so far and no answer. I left a message with my doctor's office to have my doctor call me right away, that I was unhappy with how horrible the communication has been about the results of all my tests and that I needed confirmation. Then on Monday  the 4th, I called again and finally got the receptionist and I gave her an earful so she would know I NEED TO TALK TO MY DOCTOR! Instead of trying to get the connection set up, she started asking me about how I was freaking out about the lack of communication and why. I was like " does it really matter? Bottom line is I need someone to tell me what the crap is going on, and I need it NOW, not three weeks from now when my appointment is!" She said she would call the doctor right away and have her call me back.

Wednesday August 6th- I took my copy of my most recent scans to the Chiropractic college near by to have the Radiologist there write up a report. My chiropractic team is there at the school and all know what's going on. They mentioned that when the results are in, they will call hubs to pick it up. Still waiting on that. We shall see who we get results from first...Dumb waiting game!

Thursday August 7th- (I have had my phone in my hand on full volume since Monday) 9 a.m. I look at my phone and see there is a missed call and a message. I listened to it and the receptionist was telling me to call her back. I immediately tried calling back the number she gave and a recording said " try again later, your call cannot be made" I hung up and tried the number which she actually called from and got the same message. It sounded fake so I tried calling both numbers again and again till about 5:30p.m. when I finally gave up. Never able to get connected.

Friday August 8th- Still holding my phone for a call, Nothing! Then around 4:30 in the afternoon I get a call from a specialist that said she received an order from my doc that I needed to meet with the specialist right away, two days ago. The lady wouldn't let me off the phone till I made an appointment with the doc at the first opening immediately after the doc returns from vacation. Next appointment is scheduled at 9a.m. for August 19th. After this call I immediately called my Primary doc again and amazingly enough got through but had to leave a message. In a very stern voice I said. " I HAVE TO TALK TO MY DOCTOR RIGHT AWAY ABOUT MY TEST RESULTS, THIS IS UNACCEPTABLE AND INAPPROPRIATE TO IGNORE YOUR PATIENT LIKE THIS. HAVE MY DOCTOR CALL ME A.S.A.P.!" and hung up. Still no response.... I also have been having issues with bright orange poop and I didn't think anything of it except for we had a conversation recently about color of poops and having a healthy stool. (I get this is embarrassing but nothing is out of the question because I have no dignity or anything to hide) So I looked up what it meant and came across this article... Poop colors. As you can see orange is caused by several factors. The last line is the kicker... I don't take medications or anything mentioned on there except the possibility of "LIVER DISEASE. So now we wait to hear results of what is going on and who can contact me first.

Monday August 18th- I met with my doctor today and got results, but I don't trust them. The doc is working out of an apartment room. She refused talking to me at all this month as I waited for results. She and her receptionist didn't know that I was doing other tests and that they had results of the tests, which THEY ordered. I had to remind her of the results and ask her to go over them. The whole reason for the testing was to go over my ovary and in the report there was nothing at all written about my ovary. She (doctor) assumed that I had no ovaries at all. She didn't spend more than two minutes glancing over ONE PAGE of my 40 page report I gave her with test results, previous doc letters and all sorts of stuff. She didn't want to explain anything to  D and I about anything going on. Now for results. She said that there were two things, my liver isn't filtering the fatty stuff I consume as well as it should be. My good cholesterol is low (two points). We are doing a detox cleanse right now for the next 21 days and you can follow that if you wish on our blog. Everything else is clear levels. She said she was going to get a call made to the H who did my test on ultra-sound and get feedback for my ovary. My scans that I took to the radiologist at the clinic on campus didn't know enough about the torso area of a body to make a report (he specializes in bones and occasionally muscles) so he gave them back with numbers for me to call to get the report of the scans. I am going to review previous tests and these most recent ones as soon as I get home tonight. So from my doc's view I have a clean bill of health. I am seeking a second opinion. The specialist appointment I have tomorrow is just for my OB doc and nothing else. Very misleading and confusing. Here is all I have.

Tuesday August 19th- I had an appointment scheduled with a specialist, which my doc told me yesterday was for an OB and a Oncologist. I found out it was only an OB and figured it couldn't hurt to do the appointment. So this morning I was getting ready and mis-read my clock and thought I had a few minutes to chill. Then I looked at my clock again and realized it was ten minutes before my appointment time, so we rushed over there and made it in time with no gas in our car. When we got there I went to sign in and the lady at the front desk  said she didn't have me on the schedule so I went to the other desk in the room and asked them. They didn't have me on their list either. Unfortunately when they called, they didn't call to tell me the doc's name or what I was there for. I was just lucky enough to get the address. So everyone was asking me what I was there for and I couldn't tell them. Then one of the ladies said she had my name in their files, but she didn't have me on the schedule. I was like "ok? and?". Then they came back up to the desk and said "oh yeah, we called your doc two weeks ago and told her you needed to find a different doctor because we aren't the right kind of doc for you. They said they had told you it was canceled and that you didn't need to come in today". So I turned around and went back home. I never heard anything from my doc. When I asked her about this appointment yesterday, she didn't event know that I had talked to them and had an appointment. This doctor is reckless and careless with my case. She doesn't ever know what I am talking about and doesn't read my files till I am in her office grilling her for answers. I am getting really irritated with this doc and would LOVE to go back to my doctors at the children's hospital near by. So frustrating!